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Web Links [Tag : SMEI]
Raise awareness about Dravet Syndrome. Read about Haley's story and diagnosis after six and a half years of seizures. Includes epilepsy news and events.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Haley Smith is a beautiful little girl who suffers from a catastrophic form of epilepsy called Dravet syndrome or SMEI (Severe Myoclonic Epilepsy of Infancy)
"A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles." ~ Christopher Reeves This site is dedicated to our little hero, Haley. She is a brave
"A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles." ~ Christopher Reeves This site is dedicated to our little hero, Haley. She is a brave
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Seizures,Epilepsy,Dravet Syndrome,Dravets Syndrome,SMEI,Severe Myoclonic Epilepsy,SCN1A,Developmental delay,apraxia,ataxia,sign language,service dog,seizure alert dog, therapy,God,Faith,homebirth,speech, Deputy Sheriff, Dina McMahon, Eric Nelson, Seizures
Living on Faith.....Looking for a Miracle Parenting from a "HOPE" perspective allows us to lead with courage, authenicity and purpose. Sydney is a beautiful 6 year old who was born with a genetic mutation which causes There are less than 500 confirmed diagnosis in the world. Although many more
Living on Faith.....Looking for a Miracle Parenting from a "HOPE" perspective allows us to lead with courage, authenicity and purpose. Sydney is a beautiful 6 year old who was born with a genetic mutation which causes There are less than 500 confirmed diagnosis in the world. Although many more
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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This site is dedicated to Sarah, a brave little girl with a rare seizure disorder called Dravet Syndrome, or Severe Myoclonic Epilepsy of Infancy.
This site is dedicated to Sarah , a brave little girl with intractable epilepsy. Sarah has been battling a severe seizure disorder since she was six months old. Despite the hardships in her life, Sarah is a sweet, loving, happy child who always has a hug to share. Sarah suffers from a rare seizure
This site is dedicated to Sarah , a brave little girl with intractable epilepsy. Sarah has been battling a severe seizure disorder since she was six months old. Despite the hardships in her life, Sarah is a sweet, loving, happy child who always has a hug to share. Sarah suffers from a rare seizure
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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A parent of a child with Severe Myoclonic Epilepsy of Infancy shares her experiences with the condition. Offering activities for the kids, epilepsy events and a laymen's description of Dravet's.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Shazza's: Dealing With Dravet Syndrome(SMEI)
Hi I'm Shazza and welcome to Shazza's.
I am blessed with two wonderful children, Angel is 12 and my not so little man is 10 and has a severe form of epilepsy called SMEI (Severe Myoclonic Epilepsy of Infancy) also known as Dravet Syndrome, which for my
waiting for hand_moderation
waiting for hand_moderation
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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This forum is intended for carers and parents of individuals with Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy and other related sodium channel disorders. Members must register.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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The IDEA League Family Network is for parents and carers of children diagnosed with Dravet Syndrome.
Welcome to the IDEA League Family Network This group is for parents and caregivers of children diagnosed with Dravet Syndrome (formerly known as SMEI - Severe Myoclonic Epilepsy of Infancy) and related sodium channel disorders. Dravet syndrome is a neurodevelopmental disorder that starts in
Welcome to the IDEA League Family Network This group is for parents and caregivers of children diagnosed with Dravet Syndrome (formerly known as SMEI - Severe Myoclonic Epilepsy of Infancy) and related sodium channel disorders. Dravet syndrome is a neurodevelopmental disorder that starts in
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Email and online forum for friends and family members of those with Dravet Syndrome. Members must apply.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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SMEI: Dravet Syndrome/SMEI
· Dravet Syndrome/SMEI Group Information Members: 310 Category: Founded: Sep 1, 2002 Language: English Want to share photos of your group with the world? Check them out and nominate your group. Stay up to speed on the latest Groups news and updates, visit the This group is for parents
· Dravet Syndrome/SMEI Group Information Members: 310 Category: Founded: Sep 1, 2002 Language: English Want to share photos of your group with the world? Check them out and nominate your group. Stay up to speed on the latest Groups news and updates, visit the This group is for parents
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Neurological Disorders, Epilepsy Directory.
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