Raise awareness about Dravet Syndrome. Read about Haley's story and diagnosis after six and a half years of seizures. Includes epilepsy news and events.
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Haley Smith is a beautiful little girl who suffers from a catastrophic form of epilepsy called Dravet syndrome or SMEI (Severe Myoclonic Epilepsy of Infancy)
"A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles." ~ Christopher Reeves
This site is dedicated to our little hero, Haley. She is a brave
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids.
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Seizures,Epilepsy,Dravet Syndrome,Dravets Syndrome,SMEI,Severe Myoclonic Epilepsy,SCN1A,Developmental delay,apraxia,ataxia,sign language,service dog,seizure alert dog, therapy,God,Faith,homebirth,speech, Deputy Sheriff, Dina McMahon, Eric Nelson, Seizures
Living on Faith.....Looking for a Miracle
Parenting from a "HOPE" perspective allows us to lead with courage, authenicity and purpose.
Sydney is a beautiful 6 year old who was born with a genetic mutation which causes
There are less than 500 confirmed diagnosis in the world. Although many more
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0