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Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources.
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It has been a solid 5 months since the last update. Sorry for the lack of updates but things have been busy to Alex is still wearing glasses but no longer has to wear the eye patches. The ophthalmologist says Alex's eyes are looking really good but still too early to tell if he will require
waiting for hand_moderation

Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0

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