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Raise awareness about Dravet Syndrome. Read about Haley's story and diagnosis after six and a half years of seizures. Includes epilepsy news and events.
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Haley Smith is a beautiful little girl who suffers from a catastrophic form of epilepsy called Dravet syndrome or SMEI (Severe Myoclonic Epilepsy of Infancy)
"A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles." ~ Christopher Reeves
This site is dedicated to our little hero, Haley. She is a brave
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet.
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This site is dedicated to Sarah, a brave little girl with a rare seizure disorder called Dravet Syndrome, or Severe Myoclonic Epilepsy of Infancy.
This site is dedicated to Sarah , a brave little girl with intractable epilepsy. Sarah has been battling a severe seizure disorder since she was six months old. Despite the hardships in her life, Sarah is a sweet, loving, happy child who
always has a hug to share.
Sarah suffers from a rare seizure
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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This forum is intended for carers and parents of individuals with Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy and other related sodium channel disorders. Members must register.
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The IDEA League Family Network is for parents and carers of children diagnosed with Dravet Syndrome.
Welcome to the IDEA League Family Network
This group is for parents and caregivers of children diagnosed with Dravet Syndrome (formerly known as SMEI - Severe Myoclonic Epilepsy of Infancy) and related sodium channel disorders. Dravet syndrome is a neurodevelopmental disorder that starts in
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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