Raise awareness about Dravet Syndrome. Read about Haley's story and diagnosis after six and a half years of seizures. Includes epilepsy news and events.
The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids.
Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet.
This forum is intended for carers and parents of individuals with Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy and other related sodium channel disorders. Members must register.
