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Chats and Forums
Social on-line venue for connecting people effected by epilepsy.
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Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Combined e-mail forum for parents of children with epilepsy.
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parents-of-kids-with-epilepsy: Parents of Children with Epilepsy
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parents-of-kids-with-epilepsy
· Parents of Children with Epilepsy
Group Information Members: 511 Category:
Founded: Feb 6, 2000 Language: English
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Uniting people who benefit from seizure alert or assistance dogs as well as people with epilepsy who benefit from a dog's companionship. Welcoming people who want to learn more about these wonderful dogs.
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seizurealertdogs: Seizure Alert/Companion Dogs
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· Seizure Alert/Companion Dogs
Group Information Members: 291 Category:
Founded: Mar 26, 2000 Language: English
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Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers.
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This forum is intended for carers and parents of individuals with Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy and other related sodium channel disorders. Members must register.
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The IDEA League Family Network is for parents and carers of children diagnosed with Dravet Syndrome.
Welcome to the IDEA League Family Network
This group is for parents and caregivers of children diagnosed with Dravet Syndrome (formerly known as SMEI - Severe Myoclonic Epilepsy of Infancy) and related sodium channel disorders. Dravet syndrome is a neurodevelopmental disorder that starts in
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Forum connecting parents of children with a wide variety of epilepsies around the worldwide. Incorporating poles, databases and photo gallery. Members must apply.
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Parentsofkidswithepilepsy_uk: Parents of kids with epilepsy uk
Parentsofkidswithepilepsy_uk
· Parents of kids with epilepsy uk
Group Information Members: 52 Category:
Founded: Mar 20, 2001 Language: English
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Email and online forum for friends and family members of those with Dravet Syndrome. Members must apply.
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SMEI: Dravet Syndrome/SMEI
· Dravet Syndrome/SMEI
Group Information Members: 310 Category:
Founded: Sep 1, 2002 Language: English
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This group is for parents
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Peer discussion and support forum. Includes news headlines and a chart of alternative treatment options.
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Forum for people living with epilepsy to discuss treatment options and offer peer support
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Support email forum for those considering surgery or have had brain surgery or Vagus Nerve Stimulator surgery as a treatment option for epilepsy. Registration required.
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epilepsy_surgery: This group is for people or relatives/friends of people who either had or are considering having brain surgery for Epilepsy.
· This group is for people or relatives/friends of people who either had or are considering having brain surgery for Epilepsy.
Group Information Members: 386 Category:
Founded: Jun 23, 2000 Language: English
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For those considering or who have tried surgery treatment options for epilepsy. Includes free membership, message boards and chat room. Also joining instructions.
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epilepsysupportgroup: epilepsysupportgroup
Group Information Members: 1 Category:
Founded: Feb 6, 2003 Language: English
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Details about this group which is for those who have
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