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See how Jacob bet the odds by not meeting the poor prognosis expected with this usually debilitating condition.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Infantile Spasms: A Story with a happy ending
T his is a story about our son, Jacob, who was diagnosed with Infantile Spasms when he was six months old. It is a story with a good ending-and I am creating this page so that parents can see that, despite the horrible odds, happy endings do sometimes happen for families dealing with this Today,
T his is a story about our son, Jacob, who was diagnosed with Infantile Spasms when he was six months old. It is a story with a good ending-and I am creating this page so that parents can see that, despite the horrible odds, happy endings do sometimes happen for families dealing with this Today,
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Explains how epilepsy was diagnosed in this little girl. Offering journals on their journey, information about the ketogenic diet and epilepsy signs and symptoms.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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ARE YOU THE OWNER OF THIS SITE?
When you build your Tripod site, your pages will be displayed at this address.
To start building your site, click one of the links below:
- Getting started is as easy as 1-2-3!
- Build a site in minutes! No HTML skill required!
ARE YOU VISITING THIS SITE?
Tripod
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For detailed information visit the website, please...
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Chronicles the journey of Karla Brown as she walks 9000 miles across America to raise awareness of epilepsy.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Karla is finally finished
937-days and 9,000 miles later
Please be patient as I post
more information on here and wrap things up.
From Seattle, Washington to Washington, D.C.
Howdy! My name is Karla Brown and I'd like to
tell you why I'm walking across America.
I began my walk on March 4,
For detailed information visit the website, please...
For detailed information visit the website, please...
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Bryant Lee Weasel's story about his struggle with Dravet Syndrome.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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rare seizure disorders
Bryant Lee Weasel is a handsome 5-year old boy troubled by a genetic mutation which causes Dravet's Sydrome- SMEI. Dravet Syndrome is an unfortunate clinical and genetic diagnosis of a malignant and catatstrophic epileptic syndrome. This rare genetic syndrome is due to a gene mutation that
Bryant Lee Weasel is a handsome 5-year old boy troubled by a genetic mutation which causes Dravet's Sydrome- SMEI. Dravet Syndrome is an unfortunate clinical and genetic diagnosis of a malignant and catatstrophic epileptic syndrome. This rare genetic syndrome is due to a gene mutation that
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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It has been a solid 5 months since the
last update. Sorry for the lack of updates but things have been busy to
Alex is still wearing glasses but no longer has to
wear the eye patches. The ophthalmologist says Alex's eyes are looking
really good but still too early to tell if he will require
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For detailed information visit the website, please...
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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A mum tells the story of her sons battle with epilepsy since 3 months of age and the subsequent developmental issues.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Hello my name is Matthew, I am 6 years old. I have a new brother called Ethan, he was born in March 2008.
When I was born, I was gorgeous and healthy, but at 3 months I started to get ill. This website is about my life so far, about my undiagnosed condition and about things I do with my family and
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For detailed information visit the website, please...
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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