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A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Our Pyridoxine Dependency Story - Epilepsy and Vitamin B6
Hi Everyone. Thanks so very much, as always for checking in on us. Things have been pretty crazy around here! Daniel and Jonah are now 7 years old and Samuel just celebrated birthday #3!!! If this is your first visit to our site, please read
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Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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The story of Broc Bartenhagen who was diagnosed with Infantile Spasms. A summary of tests performed, treatments and tried therapies.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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On June 27th of 2002 Broc was diagnosed
with Infantile Spasms. He was admitted to the hospital that day
and when I returned home from the hospital that evening I immediately
began searching the internet for information regarding IS. Most
of the information I found gave a very poor prognoses for
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For detailed information visit the website, please...
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Author Sally Fletcher shares the complementary practices that have helped her remain seizure free for 18 years - without medication.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Epilepsy - I know what it means to lose my dignity to this supposedly incurable disorder, and I decided to fight back. I have now been seizure-free for 18 years with no medication.
Epilepsy Health - from Sally Fletcher I know from personal experience what it means to be diagnosed with a supposedly incurable disorder. When I was 26 I had my first epileptic seizure - the result of a concussion (head trauma) that I had received in an ice skating fall. I lost my driver's
Epilepsy Health - from Sally Fletcher I know from personal experience what it means to be diagnosed with a supposedly incurable disorder. When I was 26 I had my first epileptic seizure - the result of a concussion (head trauma) that I had received in an ice skating fall. I lost my driver's
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Seizures,Epilepsy,Dravet Syndrome,Dravets Syndrome,SMEI,Severe Myoclonic Epilepsy,SCN1A,Developmental delay,apraxia,ataxia,sign language,service dog,seizure alert dog, therapy,God,Faith,homebirth,speech, Deputy Sheriff, Dina McMahon, Eric Nelson, Seizures
Living on Faith.....Looking for a Miracle Parenting from a "HOPE" perspective allows us to lead with courage, authenicity and purpose. Sydney is a beautiful 6 year old who was born with a genetic mutation which causes There are less than 500 confirmed diagnosis in the world. Although many more
Living on Faith.....Looking for a Miracle Parenting from a "HOPE" perspective allows us to lead with courage, authenicity and purpose. Sydney is a beautiful 6 year old who was born with a genetic mutation which causes There are less than 500 confirmed diagnosis in the world. Although many more
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Follow this families fight against epilepsy. Explore how radical brain surgery gave this little boy a second chance at a normal life.
Date Added: May 17, 2009 Hits: Rating: 4.50 Votes: 2
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When Alex was 4.5 months old, he was diagnosed with Infantile Spasms. Thanks to an excellent neurosurgical team in Detroit, he is now seizure-free.
On December 3, 1997 little Alex came to us with usual fanfare and no complications. What surprised us about Alex on the day he was born was that he was holding his head up and his eyes were open immediately. He was beautiful and we loved him instantly. The first 3 ½ months of growing up went much
On December 3, 1997 little Alex came to us with usual fanfare and no complications. What surprised us about Alex on the day he was born was that he was holding his head up and his eyes were open immediately. He was beautiful and we loved him instantly. The first 3 ½ months of growing up went much
Date Added: May 17, 2009 Hits: Rating: 4.50 Votes: 2
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Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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This site is dedicated to Sarah, a brave little girl with a rare seizure disorder called Dravet Syndrome, or Severe Myoclonic Epilepsy of Infancy.
This site is dedicated to Sarah , a brave little girl with intractable epilepsy. Sarah has been battling a severe seizure disorder since she was six months old. Despite the hardships in her life, Sarah is a sweet, loving, happy child who always has a hug to share. Sarah suffers from a rare seizure
This site is dedicated to Sarah , a brave little girl with intractable epilepsy. Sarah has been battling a severe seizure disorder since she was six months old. Despite the hardships in her life, Sarah is a sweet, loving, happy child who always has a hug to share. Sarah suffers from a rare seizure
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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A parent of a child with Severe Myoclonic Epilepsy of Infancy shares her experiences with the condition. Offering activities for the kids, epilepsy events and a laymen's description of Dravet's.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Shazza's: Dealing With Dravet Syndrome(SMEI)
Hi I'm Shazza and welcome to Shazza's.
I am blessed with two wonderful children, Angel is 12 and my not so little man is 10 and has a severe form of epilepsy called SMEI (Severe Myoclonic Epilepsy of Infancy) also known as Dravet Syndrome, which for my
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For detailed information visit the website, please...
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Dangerously Rare: Dravet's Syndrome
The objective of this blog page is to inform and bring awareness to the reader about a disease that is extremely rare.
This video should help provide a better understanding for the types of seizures experienced by a person suffering from Dravet's Syndrome
In
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For detailed information visit the website, please...
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Personal life stories from those who experience epilepsy and seizures.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Do You Have Epilepsy? Join an anonymous group with personal stories, support group forums, and experiences. Also includes surveys, quizzes & videos
Find Groups, Support, and Chat! Here you can find forums, stories, support groups, chat, and make new friends. New Here? Joining is free , anonymous , & quick . Read true personal stories, chat, & get advice from a group of 69 people who all say 'I Have Epilepsy' Support this group by adopting
Find Groups, Support, and Chat! Here you can find forums, stories, support groups, chat, and make new friends. New Here? Joining is free , anonymous , & quick . Read true personal stories, chat, & get advice from a group of 69 people who all say 'I Have Epilepsy' Support this group by adopting
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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Cody has infantile spasms, a particularly nasty epilepsy starting in infancy. Videos, the photo gallery, treatments tried and support resources.
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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News and updates on Cody
Welcome To Crazy For Cody In late May of 2005, our dear little Cody was diagnosed with "infantile spasms" - a catastrophic epileptic syndrome that typically strikes babies between 4-7 months. He was given a 95% chance of retardation. He averaged 400 seizures a day for 8 months. Two days
Welcome To Crazy For Cody In late May of 2005, our dear little Cody was diagnosed with "infantile spasms" - a catastrophic epileptic syndrome that typically strikes babies between 4-7 months. He was given a 95% chance of retardation. He averaged 400 seizures a day for 8 months. Two days
Date Added: May 17, 2009 Hits: Rating: 0.00 Votes: 0
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