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Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources.
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It has been a solid 5 months since the
last update. Sorry for the lack of updates but things have been busy to
Alex is still wearing glasses but no longer has to
wear the eye patches. The ophthalmologist says Alex's eyes are looking
really good but still too early to tell if he will require
For detailed information visit the website, please...
A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys.
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Our Pyridoxine Dependency Story - Epilepsy and Vitamin B6
Hi Everyone. Thanks so very much, as always for checking in on us. Things have been pretty crazy around here! Daniel and Jonah are now 7 years old and Samuel just celebrated birthday #3!!! If this is your first visit to our site, please read
For detailed information visit the website, please...
Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet.
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This site is dedicated to Sarah, a brave little girl with a rare seizure disorder called Dravet Syndrome, or Severe Myoclonic Epilepsy of Infancy.
This site is dedicated to Sarah , a brave little girl with intractable epilepsy. Sarah has been battling a severe seizure disorder since she was six months old. Despite the hardships in her life, Sarah is a sweet, loving, happy child who
always has a hug to share.
Sarah suffers from a rare seizure