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Baby Bryant My Hero
Title

Baby Bryant My Hero

Url http://www.freewebs.com/bryanttel/
Description Bryant Lee Weasel's story about his struggle with Dravet Syndrome.
Category Personal Pages
Random Site Quote: rare seizure disorders
Bryant Lee Weasel is a handsome 5-year old boy troubled by a genetic mutation which causes Dravet's Sydrome- SMEI. Dravet Syndrome is an unfortunate clinical and genetic diagnosis of a malignant and catatstrophic epileptic syndrome. This rare genetic syndrome is due to a gene mutation that
Keywords seizures
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 Other links at Personal Pages
1. Julie Dennison: Living with Epilepsy
  A sufferer from epilepsy all her life, Julie now lectures and writes on the subject. Samples of her work are included on the site.
Category:   Personal Pages


2. Mackenzie and the Diagnoses of Epilepsy
  Explains how epilepsy was diagnosed in this little girl. Offering journals on their journey, information about the ketogenic diet and epilepsy signs and symptoms.
Category:   Personal Pages


3. A Dream for Sarah
  Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet.
Category:   Personal Pages


4. Infantile Spasms - Broc's Story
  The story of Broc Bartenhagen who was diagnosed with Infantile Spasms. A summary of tests performed, treatments and tried therapies.
Category:   Personal Pages


5. Our Pyridoxine Dependency Story - Epilepsy and Vitamin B6
  A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys.
Category:   Personal Pages




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