Mackenzie and the Diagnoses of Epilepsy
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Dangerously Rare: Dravet's Syndrome
The objective of this blog page is to inform and bring awareness to the reader about a disease that is extremely rare.
This video should help provide a better understanding for the types of seizures experienced by a person suffering from Dravet's Syndrome
In
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A mum tells the story of her sons battle with epilepsy since 3 months of age and the subsequent developmental issues.
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Hello my name is Matthew, I am 6 years old. I have a new brother called Ethan, he was born in March 2008.
When I was born, I was gorgeous and healthy, but at 3 months I started to get ill. This website is about my life so far, about my undiagnosed condition and about things I do with my family and
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Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources.
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It has been a solid 5 months since the
last update. Sorry for the lack of updates but things have been busy to
Alex is still wearing glasses but no longer has to
wear the eye patches. The ophthalmologist says Alex's eyes are looking
really good but still too early to tell if he will require
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