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Jacob's Infantile Spasms

Jacob's Infantile Spasms

http://www.netnomad.com/is.html See how Jacob bet the odds by not meeting the poor prognosis expected with this usually debilitating condition. Infantile Spasms: A Story with a happy ending
T his is a story about our son, Jacob, who was diagnosed with Infantile Spasms when he was six months old. It is a story with a good ending-and I am creating this page so that parents can see that, despite the horrible odds, happy endings do sometimes happen for families dealing with this Today,
Infantile Spasms, Vigabatrin Personal Pages

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The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids.
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Seizures,Epilepsy,Dravet Syndrome,Dravets Syndrome,SMEI,Severe Myoclonic Epilepsy,SCN1A,Developmental delay,apraxia,ataxia,sign language,service dog,seizure alert dog, therapy,God,Faith,homebirth,speech, Deputy Sheriff, Dina McMahon, Eric Nelson, Seizures
Living on Faith.....Looking for a Miracle Parenting from a "HOPE" perspective allows us to lead with courage, authenicity and purpose. Sydney is a beautiful 6 year old who was born with a genetic mutation which causes There are less than 500 confirmed diagnosis in the world. Although many more


Personal life stories from those who experience epilepsy and seizures.
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Do You Have Epilepsy? Join an anonymous group with personal stories, support group forums, and experiences. Also includes surveys, quizzes & videos
Find Groups, Support, and Chat! Here you can find forums, stories, support groups, chat, and make new friends. New Here? Joining is free , anonymous , & quick . Read true personal stories, chat, & get advice from a group of 69 people who all say 'I Have Epilepsy' Support this group by adopting


Bryant Lee Weasel's story about his struggle with Dravet Syndrome.
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rare seizure disorders
Bryant Lee Weasel is a handsome 5-year old boy troubled by a genetic mutation which causes Dravet's Sydrome- SMEI. Dravet Syndrome is an unfortunate clinical and genetic diagnosis of a malignant and catatstrophic epileptic syndrome. This rare genetic syndrome is due to a gene mutation that



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