Dangerously Rare: Dravet's Syndrome

Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet.
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This site is dedicated to Sarah, a brave little girl with a rare seizure disorder called Dravet Syndrome, or Severe Myoclonic Epilepsy of Infancy.
This site is dedicated to Sarah , a brave little girl with intractable epilepsy. Sarah has been battling a severe seizure disorder since she was six months old. Despite the hardships in her life, Sarah is a sweet, loving, happy child who always has a hug to share. Sarah suffers from a rare seizure

Follow this families fight against epilepsy. Explore how radical brain surgery gave this little boy a second chance at a normal life.
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When Alex was 4.5 months old, he was diagnosed with Infantile Spasms. Thanks to an excellent neurosurgical team in Detroit, he is now seizure-free.
On December 3, 1997 little Alex came to us with usual fanfare and no complications. What surprised us about Alex on the day he was born was that he was holding his head up and his eyes were open immediately. He was beautiful and we loved him instantly. The first 3 ½ months of growing up went much

The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids.
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Living on Faith.....Looking for a Miracle Parenting from a "HOPE" perspective allows us to lead with courage, authenicity and purpose. Sydney is a beautiful 6 year old who was born with a genetic mutation which causes There are less than 500 confirmed diagnosis in the world. Although many more