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Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources.
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It has been a solid 5 months since the
last update. Sorry for the lack of updates but things have been busy to
Alex is still wearing glasses but no longer has to
wear the eye patches. The ophthalmologist says Alex's eyes are looking
really good but still too early to tell if he will require
For detailed information visit the website, please...
The story of Broc Bartenhagen who was diagnosed with Infantile Spasms. A summary of tests performed, treatments and tried therapies.
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On June 27th of 2002 Broc was diagnosed
with Infantile Spasms. He was admitted to the hospital that day
and when I returned home from the hospital that evening I immediately
began searching the internet for information regarding IS. Most
of the information I found gave a very poor prognoses for
For detailed information visit the website, please...
Cody has infantile spasms, a particularly nasty epilepsy starting in infancy. Videos, the photo gallery, treatments tried and support resources.
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News and updates on Cody
Welcome To Crazy For Cody
In late May of 2005, our dear little Cody was diagnosed with "infantile spasms" - a catastrophic epileptic syndrome that typically strikes babies between 4-7 months. He was given a 95% chance of retardation. He averaged 400 seizures a day for 8 months. Two days