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See how Jacob bet the odds by not meeting the poor prognosis expected with this usually debilitating condition.
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Infantile Spasms: A Story with a happy ending
T his is a story about our son, Jacob,
who was diagnosed with Infantile Spasms when he was six months
old. It is a story with a good ending-and I am creating this
page so that parents can see that, despite the horrible odds,
happy endings do sometimes happen for families dealing with this
Today,
A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys.
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Our Pyridoxine Dependency Story - Epilepsy and Vitamin B6
Hi Everyone. Thanks so very much, as always for checking in on us. Things have been pretty crazy around here! Daniel and Jonah are now 7 years old and Samuel just celebrated birthday #3!!! If this is your first visit to our site, please read
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Bryant Lee Weasel's story about his struggle with Dravet Syndrome.
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rare seizure disorders
Bryant Lee Weasel is a handsome 5-year old boy troubled by a genetic mutation which causes Dravet's Sydrome- SMEI. Dravet Syndrome is an unfortunate clinical and genetic diagnosis of a malignant and catatstrophic epileptic syndrome. This rare genetic syndrome is due to a gene mutation that