Infantile Spasms and Surgery: Alex's Story
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Dangerously Rare: Dravet's Syndrome
The objective of this blog page is to inform and bring awareness to the reader about a disease that is extremely rare.
This video should help provide a better understanding for the types of seizures experienced by a person suffering from Dravet's Syndrome
In
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A parent of a child with Severe Myoclonic Epilepsy of Infancy shares her experiences with the condition. Offering activities for the kids, epilepsy events and a laymen's description of Dravet's.
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Shazza's: Dealing With Dravet Syndrome(SMEI)
Hi I'm Shazza and welcome to Shazza's.
I am blessed with two wonderful children, Angel is 12 and my not so little man is 10 and has a severe form of epilepsy called SMEI (Severe Myoclonic Epilepsy of Infancy) also known as Dravet Syndrome, which for my
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Follow this families fight against epilepsy. Explore how radical brain surgery gave this little boy a second chance at a normal life.
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When Alex was 4.5 months old, he was diagnosed with Infantile Spasms. Thanks to an excellent neurosurgical team in Detroit, he is now seizure-free.
On December 3, 1997 little Alex came to us with usual fanfare and no complications. What surprised us about Alex on the day he was born was that he was holding his head up and his eyes were open immediately. He was beautiful and we loved him instantly. The first 3 ½ months of growing up went much