Hope for Sydney

Url http://www.HopeForSydney.com Description The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids. Random Quote Seizures,Epilepsy,Dravet Syndrome,Dravets Syndrome,SMEI,Severe Myoclonic Epilepsy,SCN1A,Developmental delay,apraxia,ataxia,sign language,service dog,seizure alert dog, therapy,God,Faith,homebirth,speech, Deputy Sheriff, Dina McMahon, Eric Nelson, Seizures
Living on Faith.....Looking for a Miracle Parenting from a "HOPE" perspective allows us to lead with courage, authenicity and purpose. Sydney is a beautiful 6 year old who was born with a genetic mutation which causes There are less than 500 confirmed diagnosis in the world. Although many more Keywords Sydney Nelson, Dina McMahon, Eric Nelson, Seizures, Epilepsy, Dravet Syndrome, SMEI, Severe Myoclonic Epilepsy, Dravet, SCN1A, Make a Wish, Disability Category Personal Pages Contact Name Email

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1. Crazy For Cody

Cody has infantile spasms, a particularly nasty epilepsy starting in infancy. Videos, the photo gallery, treatments tried and support resources.
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News and updates on Cody
Welcome To Crazy For Cody In late May of 2005, our dear little Cody was diagnosed with "infantile spasms" - a catastrophic epileptic syndrome that typically strikes babies between 4-7 months. He was given a 95% chance of retardation. He averaged 400 seizures a day for 8 months. Two days

2. Shazza's: Dealing with Dravet Syndrome

A parent of a child with Severe Myoclonic Epilepsy of Infancy shares her experiences with the condition. Offering activities for the kids, epilepsy events and a laymen's description of Dravet's.
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Shazza's: Dealing With Dravet Syndrome(SMEI) Hi I'm Shazza and welcome to Shazza's. I am blessed with two wonderful children, Angel is 12 and my not so little man is 10 and has a severe form of epilepsy called SMEI (Severe Myoclonic Epilepsy of Infancy) also known as Dravet Syndrome, which for my
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3. Infantile Spasms and Surgery: Alex's Story

Follow this families fight against epilepsy. Explore how radical brain surgery gave this little boy a second chance at a normal life.
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When Alex was 4.5 months old, he was diagnosed with Infantile Spasms. Thanks to an excellent neurosurgical team in Detroit, he is now seizure-free.
On December 3, 1997 little Alex came to us with usual fanfare and no complications. What surprised us about Alex on the day he was born was that he was holding his head up and his eyes were open immediately. He was beautiful and we loved him instantly. The first 3 � months of growing up went much

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