Infantile Spasms - Broc's Story
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Dangerously Rare: Dravet's Syndrome
The objective of this blog page is to inform and bring awareness to the reader about a disease that is extremely rare.
This video should help provide a better understanding for the types of seizures experienced by a person suffering from Dravet's Syndrome
In
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The story of Broc Bartenhagen who was diagnosed with Infantile Spasms. A summary of tests performed, treatments and tried therapies.
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On June 27th of 2002 Broc was diagnosed
with Infantile Spasms. He was admitted to the hospital that day
and when I returned home from the hospital that evening I immediately
began searching the internet for information regarding IS. Most
of the information I found gave a very poor prognoses for
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Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources.
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It has been a solid 5 months since the
last update. Sorry for the lack of updates but things have been busy to
Alex is still wearing glasses but no longer has to
wear the eye patches. The ophthalmologist says Alex's eyes are looking
really good but still too early to tell if he will require
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