Our Pyridoxine Dependency Story - Epilepsy and Vitamin B6
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Bryant Lee Weasel's story about his struggle with Dravet Syndrome.
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rare seizure disorders
Bryant Lee Weasel is a handsome 5-year old boy troubled by a genetic mutation which causes Dravet's Sydrome- SMEI. Dravet Syndrome is an unfortunate clinical and genetic diagnosis of a malignant and catatstrophic epileptic syndrome. This rare genetic syndrome is due to a gene mutation that
Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources.
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It has been a solid 5 months since the
last update. Sorry for the lack of updates but things have been busy to
Alex is still wearing glasses but no longer has to
wear the eye patches. The ophthalmologist says Alex's eyes are looking
really good but still too early to tell if he will require
For detailed information visit the website, please...
Author Sally Fletcher shares the complementary practices that have helped her remain seizure free for 18 years - without medication.
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Epilepsy - I know what it means to lose my dignity to this supposedly incurable disorder, and I decided to fight back. I have now been seizure-free for 18 years with no medication.
Epilepsy Health - from Sally Fletcher
I know from personal experience what it means to be diagnosed with a supposedly incurable disorder. When I was 26 I had my first epileptic seizure - the result of a concussion (head trauma) that I had received in an ice skating fall.
I lost my driver's